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Leaky Battery

May 27, 2015
"Your insulin pump is too dangerous to use right now. Please take it off immediately."

“Your insulin pump is too dangerous to use right now. Please take it off immediately.”

All the Links

May 17, 2015

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The very first inspiration for Diabetes Blog Week was to help connect our blogging community, and that continues to be the most important reason it’s held every year.  So let’s help foster and continue those connections as we wrap up another Dblog Week.  Share a link to a new blog you’ve found or a new friend you’ve made.  Or pick a random blog off of the Participant’s List, check it out and share it with us.  Let’s take some time today to make new friends.

From the beginning, Diabetes Blog Week has been about building the community. There are heart-warming, gut-wrenching, soul-sharing & belly laughing posts out there. Every single post deserves to be read, but I’m just one person and can’t read them all in one week. Here are the ones I’ve read and have stuck out and I think you should read too. (In order of when I read them.) 

This girl is a seriously powerful writer and I'm happy to call her a friend.

This girl is a seriously powerful writer and I’m happy to call her a friend.

(I’m sorry I’m SO late for today, but the weather has been beautiful and I’ve been outside all day. This also means I haven’t been able to catch up at all, so here are six days worth of blogs I think are worth reading.) 

Heather x2

Alecia x2 

Steffi

Joanne 

Amber

Rachel 

Christel

Kerri

Renza 

Liz

Katy

Tamsin 

Jennifer 

Jenn 

Karen 

Celine x2 

As always, a WICKED BIG thank you to Karen for brainstorming & hosting Diabetes Blog Week! We could not do this without you. Here are other bloggers’ favorites! 

Diabetes. Blog. Life.

May 16, 2015

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If you have been blogging for a while, what is your favorite sentence or blogpost that you have ever written?  Is it diabetes related or just life related?  If you are a new blogger and don’t have a favorite yet, tell us what motivated you to start sharing your story by writing a blog?  (Thank you Laddie of Test Guess and Go for suggesting this topic.)

Maybe this is cheating. But maybe this is the easiest way for me to tell you all that I feel. There are so many parts of me, just like there are lots of pieces to you. I’m separating this post into three types of motivation. Diabetes. Blog. Life. I’ve gone through my Pinterest thoughtful board and found quotes that motivate me to be the best I can be in those three areas.  These motivations keep me going. They help me stay true to me. They help me write here (and decide what to write). They help me be okay with all that diabetes throws at me and keep me working hard every day to make my diabetes life as easy as possible. 

Diabetes Motivations 

  

  

  
  

Blog Motivations

  

  
 
  

  

   

Life Motivations. 

  

   
 

   
         

We are all motivated by different thoughts, people, words and ideas. Check here for other bloggers’ motivations. 

Don’t Read This Hungry

May 15, 2015

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Taking a cue from Adam Brown’s recent post, write a post documenting what you eat in a day!  Feel free to add links to recommended recipes/shops/whatever.  Make it an ideal day or a come-as-you-are day – no judgments either way.  (Thank you, Katy of  Bigfoot Child Have Diabetes for this topic.)

I like to think that I have the self control to always eat what will make my diabetes easier to manage/stabilize. However, I am not that kind of person. I don’t buy ice cream to keep in the house because I have no self-control, therefore ice cream stands are my favorite. Since I have no self-control, I work really hard to keep healthier foods around. Sometimes I’m successful, sometimes I’m not. Here’s a “day.” (I’ve been sick this week so this is a combination of days, which might look like a real day on a healthy day.)

Breakfast 

Every day starts with coffee.

Every day starts with coffee.

If I'm feeling exceptionally healthy, I'll have yogurt & fruit for breakfast. Peanut butter toast is usually my go-to.

If I’m feeling exceptionally healthy, I’ll have yogurt & fruit for breakfast. Peanut butter toast is usually my go-to.

Lunch 

I try to have salads or other various combinations of vegetables for lunch.

I try to have salads or other various combinations of vegetables for lunch.

Sometimes the vegetables are cooked

Sometimes the vegetables are cooked

Snacks 

My desired snack in the middle of the afternoon is chips & dip. Instead I make things like this grapefruit salsa to make me feel better.

My desired snack in the middle of the afternoon is chips & dip. Instead I make things like this grapefruit salsa to make me feel better.

Almonds (especially flavored ones) are another of my go-to afternoon snacks.

Almonds (especially flavored ones) are another of my go-to afternoon snacks.

Another snack choice is fruit. Typically berries, but I eat those too fast to take a picture for you.

Another snack choice is fruit. Typically berries, but I eat those too fast to take a picture for you.

Dinner 

My new favorite dinner vegetable is baked broccoli.

My new favorite dinner vegetable is baked broccoli.

I've even made an entire chicken a time or two. (Chicken is a common dinner protein source, though generally not this fancy.)

I’ve even made an entire chicken a time or two. (Chicken is a common dinner protein source, though generally not this fancy.)

Sometimes at dinner I like to combine my protein and carbs, like taco night.

Sometimes at dinner I like to combine my protein and carbs, like taco night.

Sometimes I get hungry after dinner and popcorn is my snack of choice.

Sometimes I get hungry after dinner and popcorn is my snack of choice.

Here are a few other tid-bits you might find important/interesting. 

All day I drink water. I typically add lemon or lime to it as well (sometimes both).

All day I drink water. I typically add lemon or lime to it as well (sometimes both).

This would be breakfast, lunch, snack and dinner if I could.

This would be breakfast, lunch, snack and dinner if I could.

This is NOT a typical day for me, just examples of how I like to eat. I try to eat a well-rounded, balanced diet. I can get pretty bored with foods, so I vary from day to day. If you have questions about any of the foods I’ve mentioned, don’t hesitate to ask. If you have questions about how these food affect my blood sugars, then I can’t really answer your questions. I do try to pay attention, but I don’t keep enough logs or data to know exactly how any food affects me. This is what works for me, and I hope that you have things that work for you. I think that cookbooks and Pinterest are the greatest things in the world to keep variety in my diet.

Here is what other people are eating! 

Overnight Change

May 14, 2015

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Today let’s talk about changes, in one of two ways.  Either tell us what you’d most like to see change about diabetes, in any way.  This can be management tools, devices, medications, people’s perceptions, your own feelings – anything at all that you feel could use changing.  OR reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes.  Were they expected or did they surprise you?

I’m traveling back to high school today. 

My pediatric endo started suggesting a pump for me at least 2 years before I went on the pump. I had no interest. I was doing well on Lente & Regular and I liked the predictability of my life and I knew what I needed to eat and I knew how to stay healthy. There was nothing anyone could say to make me want an insulin pump. I remember a camp friend, who had the same doctor, who wanted an insulin pump more than anything. The endo didn’t think she was actually ready for this transition. (Keep in mind that insulin pumps were NOT the norm at that time.) I remember her telling me how crazy I was for not transitioning to the insulin pump when our doctor was encouraging this. And could I talk to the doctor for her?! 

Diabetes camp friends

Diabetes camp friends

I ran cross-country and the team decided to go to Olive Garden after practice one night. We decided at practice. We wanted to get to dinner, but I had to borrow a cell phone (and find someone willing to let me use their precious minutes). I called my dad who worked down the road from my school, who drove to our house 30 minutes away, then back to give me my insulin. I was so embarassed that my diabetes could make all of us late. He handed over my insulin and off we went. That night after I got home I talked to my mother about NEEDING the insulin pump. I realized that life won’t always be able to be worked around my eating schedule. It took one day for me to want to radically change my diabetes care. Six months later, I was on a pump and I haven’t looked back

What have you changed in your diabetes life? Check here for other changes. 

My First Blackout

May 13, 2015

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Today I’m choosing a wild card post. I tried to write about Clean It Out, but the words just never sounded right. I’ll only be sharing one story though. Here’s my prompt for today: 

Diabetes can sure bring some crazy moments.  So tell us your Top 3 craziest D related stories!  If you can’t think of three, don’t worry.  We’re just as happy with one or two . . . .   (Thank you Maria M of My Life: A Long Trip with T1D for this topic.)

I ran into one of these friends at a restaurant this year and I started thinking about this story. Should I tell it? Am I remembering it correctly? 

It was a high school dance. I was completely sober all through high school. At the time, drinking with diabetes terrified me. People kept telling me it would feel like feeling low and why on Earth would I want to duplicate that feeling?!

I was still on the exchange system eating only when needed and still taking Lente & Regular and testing 4 or 6 times per day and therefore not carrying my meter with me. I remember feeling low. I went out to my  bag to get my tube of tabs. I had two because that is how many I treated with at the time. I wasn’t feeling better. I had the whole tube (10 glucose tabs). My two best friends sat with me and asked me what else to do. I told them to go find my best friend from second grade. The one who wouldn’t hurt a fly, who asked my mother in junior high how to take care of me if my mom wasn’t around. The social butterfly who just didn’t run in our circle. This is where my memory cuts out. They got her, and she got me a can of Sprite and peanut butter crackers. At some point a speaker blew out and the music stopped after a loud bang and no one believes I don’t recall this. One friend went to get her car and the other helped me with my shoes and jacket and purse and they drove me home. When we were driving by a gas station a mile from my house I perked up in the backseat and asked how I got there? They walked me inside and left me with my parents. 

One of the friends who drove me home

One of the friends who drove me home

We never talked about this again. I don’t know how they felt and I don’t know how scared my parents were. I don’t know if they even still think about it. I haven’t talked about this one in a long time, but it’s crazy and wild and it hasn’t happened again. Check here for other crazy diabetes stories! 

Shhh

May 12, 2015

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Many of us share lots of aspects of our diabetes lives online for the world to see.  What are some of the aspects of diabetes that you choose to keep private from the internet?  Or from your family and friends?  Why is it important to keep it to yourself?  (This is not an attempt to get you out of your comfort zone.  There is no need to elaborate or tell personal stories related to these aspects.  Simply let us know what kinds of stories we will never hear you tell, and why you won’t tell them.)

(Thank you Scott E of Rolling in the D for this topic.)

There are a few subjects that I won’t write about here. Some may appear if I’m still writing in a few years, but at this point in my life, it’s not something I want to be out there publicly. I have talked about them with a few trusted friends, but the thought of being googled and someone reading my deepest fear, well that’s a little intimidating. If I write about it here, it gives family and friends (and maybe even acquaintances) the chance/opportunity/permission to ask about it in public settings. The information I won’t write about are items I keep near & dear to my heart. If I decide to talk about them, I want it to be on my terms. 

I appreciate being an open book for you regarding my diabetes. I want to help and to give you ideas. I appreciate when you are an open book as well. However, I also appreciate our privacy. Check here for what others hold onto for themselves. 

I CAN. And You Can Too

May 11, 2015

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It’s Diabetes Blog Week! It’s a great community building week hosted by Karen at Bitter-Sweet. There’s a topic every day, with a few wild card topics as well.

In the UK, there was a diabetes blog theme of “I can…”  that participants found wonderfully empowering.  So lets kick things off this year by looking at the positive side of our lives with diabetes.  What have you or your loved one accomplished, despite having diabetes, that you weren’t sure you could?  Or what have you done that you’ve been particularly proud of?  Or what good thing has diabetes brought into your life?

As far as I’m concerned, diabetes has always been in my life. My stubborn, perseverant self has always been around, and made diabetes easier to live with.

  • I CAN do anything I put my mind to.
  • I CAN go days without diabetes interfering.
  • I CAN go hours where diabetes is all I think about.
  • I WILL (likely) do what you think I cannot. If it’s something I have no desire to do, than who cares if I don’t do it?! It might take planning and brainstorming, but I’ll do it. 
  • I WILL make sure that my life is healthy and my body is healthy.
  • I DO make a distinction between my body and my diabetes body. If someone says “let’s go run 6 miles right now,” I might have the thought “I’d love to, and it’d be hard because I’ve only run 3 miles lately” would run through my mind and then I’ll go to “how will my diabetes body react?”
  • I’m ALLOWED to be terrified of diabetes at times. 
  • I CAN help others.
  • I CAN do it all. And so can you.  

I've been doing this for 25 years, and I plan on doing it for at least 50 more!

I’ve been doing this for 25 years, and I plan on doing it for at least 50 more!

What can YOU do with diabetes?

Want to see what others can do? Check out the list here!   

Take the Time

April 28, 2015

I wasn’t planning on participating. I didn’t want to take away from the original teacher, education moment. Then I started reading and I saw how valuable sharing secrets are. How amazing vulnerabilities make us. How those vulnerabilities bring us together. They make us stronger. Together. 

This post will be mostly pictures. These are the tweets I posted & retweeted with the hashtag #IWishPeopleKnewThatDiabetes. This is by NO means the majority of thoughts or encompasses all the feelings of the whole population of people with diabetes. This is what I feel. And what resonates with me. Please take the time to read these; think about what they mean for me; think about what they mean for other people with diabetes. 

Retweets  

  

   

 

  
  
  
  
  
  
  
  
My Thoughts

  

  
  
  
  
  
  
  
  
  
  
  
  
Thank you Kelly for starting this movement. 

 

Join Me This Saturday!

April 20, 2015

What are you doing Saturday? If you’re in New England and not busy, you should come with me. I’m going to a fundraiser for The Barton Center. What could be better than a Spring Tasting with wine, beer & liquors, plus appetizers and a cash bar? And the price of admission is only $20! I did not go to Clara Barton, but I did go to diabetes camp as a camper, CIT and counselor. I have plenty of friends who went to Clara Barton/Camp Joslin and this fundraiser is solely for camperships. There is a piece of me that wants all of my money to go to research. But my inner child and giving soul LOVES camp and I want all children who want to go to diabetes camp to have the chance to go. Please, come join me! 

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And you can buy tickets at the door. I hope to see you there! 

The link button isn’t working, so here you go: 
The Barton Center: http://www.bartoncenter.org/
Spring Tasting: http://www.bartoncenter.org/node/98
Facebook Spring Tasting Event: https://www.facebook.com/events/1065129516845944/