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Where my Heart Lives

May 12, 2014

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Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you.
Thanks go out to Kim of Texting my Pancreas for inspiring this topic.
You can go here to find out how other people Change the World

I don’t see myself changing the world. I don’t think I’m that important or influential. I still see myself as the scared shy girl who can’t talk to strangers. Somehow though, I still have a voice that gets heard. I raise money, I sign petitions, I retweet to spread information, but my heart isn’t in those. My heart lives with the people.

Jumping on a plane to meet a friend :)

Jumping on a plane to meet a friend 🙂

I love diabetes meetups. I will do anything to see others with diabetes. When I was diagnosed with diabetes I thought it was some crazy rare disease and I would never meet another person with it. When my dad’s cousin was diagnosed with T1, it was one of the great moments in my small life. We went to a support group and there were people! With T1! At first I felt like I was the only one my age with T1 and then this girl showed up and not only were we in the same grade, but we lived in the same town! It was like having an instant friend. Then I went to diabetes camp and the whole world changed. Everywhere I turned there were kids and adults and people I loved with diabetes. This is the world I wanted to live in forever.

JDRF YLC

JDRF YLC

I grew up and camp couldn’t be in my life every summer anymore. I struggled with finding local people with diabetes. I didn’t want to go to a support group (mostly because of their descriptions – I didn’t want a guided topic led by a medical professional. I wanted real people living real lives with T1 diabetes.) And then I found it. All thanks to camp friends and twitter. I’ve done some crazy things to see the people who live online, but I wouldn’t have it any other way. The people I meet, the people I will meet, the people who comment or email and say “thank you,” this is why I do it.

Friends for Life!

Friends for Life!

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5 Comments leave one →
  1. Katy permalink
    May 12, 2014 10:15 PM

    I am sad that it’s time (past time) to sign up for d-camp and my boy does not want to go.

    The top photo makes me want a big platter of nachos. Nachos. Nachos. Preferably with an adorable friend!

    • May 18, 2014 9:17 PM

      One of my best friends had a miserable time at camp; it is definitely not for everyone and that’s okay! I think in today’s online world kids have more chances to meet other kids with D even without camp. Plus he has FFL!

  2. May 13, 2014 4:14 PM

    You are important and influential. You write from the heart and it moves people. That’s pretty great advocacy to me.

  3. May 18, 2014 5:48 PM

    I think “the people” is how we ARE going to change the world!

  4. June 11, 2014 12:13 PM

    You are absolutely changing the world with all that you do. And you know, we need to see each other more often, I think, no?

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