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November 8, 2013

What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?

Three years ago, for DBlog Day, the prompt was “Six Things I want you to know about Diabetes.” I know that copy & pasting might seem like cheating, but I also know that I spent a lot of time on my list, and I still believe in the whole thing. Even though life has changed since then, what I want you to know has not. I’m going to give you my first: Just like it takes a community to raise a child, it takes a community to take care of & support a person with diabetes. 

I wrote about independence. I am still serious about not wanting to do this by myself.  Technically, first and foremost should probably be my doctor.  But first and foremost are the friends I have with diabetes. Diabetes is so much more than a broken pancreas, and on the bad days my friends are there to listen, support me, and possibly give advice.  My friends without diabetes are also supportive, and help me be just another person.  And of course there is my family who has been there since day 1.  It’s the little things, like my cousins wearing blue last week, or having Fruit Pizza as a birthday cake, or helping me test my BG as a kid, or my uncle not having favors at his wedding, but instead donations were made in my name to the American Diabetes Association.  And of course there is Mom & Dad.  Words cannot describe what they have done & will do for me.  All these people make it possible to live with diabetes, and live fully.  Then of course there is the endocrinologist and that support system who is there to make sure I am up to date with my diabetes information, that I am taking care of myself for the long-term, and there to answer my questions when I have exhausted all other options. When I was little, there was the diabetes educator and the nutritionist.  Every year they helped us figure out a good diabetes schedule that worked for me around the school lunch schedule.  (Especially in eighth grade when I had lunch at 10:30 AM.) There is the customer service reps at Minimed (now Animas) who help me when I have an alarm I’m not used to, or a broken pump.  There is my gym, the lady at the bar with a pump, the diabetes cookbooks (which I just get angry at because I feel they’re trying to tell me what to eat), and last but not least, online support groups (which I’m definitely new to).  I decided to jump in with both feet, and I am whole-heartedly enjoying this decision.  Thank you to all who are making this a wonderful experience.

Community

Community

I am no longer new to the diabetes online community, but I am still in awe of it. Every day it gets bigger & better. There are new people to meet, and new experiences to read about. When I originally wrote this, there was no such thing as a You Can Do This Project. This community is incredible.

I need to know my body. I need to listen to my body. But there is no way I will ever do this by myself, and that is how it should be.

I have not done a blog carnival in a long time, but I’m glad I remembered to check. If you would like to participate, head on over to DCAF, and check out all the wonderful work they are doing! 

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5 Comments leave one →
  1. November 8, 2013 9:54 AM

    This is a great post! I enjoy reading your story, and I’m glad you tell it so well.

    • November 8, 2013 10:09 PM

      Thank you! Knowing people like my story makes it worth telling.

  2. November 8, 2013 10:56 AM

    YES!

  3. November 18, 2013 1:43 PM

    Fantastic post! I’m so glad we don’t have to do it alone, and I’m so glad to call you a friend.

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  1. Diabetes Community Advocacy Foundation – DSMA Blog Carnival – November Round-Up

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