I did today’s post a little differently than I normally do. Yesterday was latest “endo” appointment, and there were a lot of emotions swirling around in my brain. So I wrote the beginning of my post before I left. I didn’t know where my emotions would be post appointment, and I wanted to be able to accurately capture all emotions included both before and after this appointment.
Today I have an appointment with my D nurse. I’m excited for this appointment. I know, it sounds crazy. But for the first time in a LONG time, I think I’ll have an A1C under 8. And I think the last time that happened was when I saw her and when I had the first one.
But I also have a list of questions I need to ask. The first being about seeing an endo. Since I had such an awesome endo as a kid, I feel as though that is the right path. I won’t stop seeing my nurse, because she’s awesome. But there’s just something in me that thinks I should also see an endo.
And then the fun questions. When I was skiing, my 3rd and 4th toes of my right foot got tingly. I think it only happened in the chairlift, and skiing down the mountain made it go away. But I still don’t like that feeling. BUT, it could be because my toes are in a tight, enclosed space. And cold. Please pray that that is what it is.
But my feet also get tingly when I sit cross legged. And I sit cross-legged all the time. I know that sitting like that can enhance neuropathy. But it’s such a habit. And even sitting here writing this I’m cross-legged. I am trying beyond anything to stop sitting like that, because it’s the only time my feet get tingly. But Diabetes, PLEASE don’t be the cause. Please let this go away if I stop crossing my legs. When I get the little pokey thing on my foot, please let me feel it. Please don’t make me walk away crying.
And just this week I wasn’t feeling like I was at the top of the game, and as I went to bed Sunday night I realized that I have the classic Celiac symptoms. This is the one that is most pressing on my mind at the moment. I have friends and family who have this, so I’ve certainly eaten this way before, but not as a lifestyle. Yesterday I tried to eat gluten free to see if my symptoms stayed or went away. And guess what, they went away. I know that one day doesn’t prove anything, but it’s certainly leaning in that direction. There was more around that was gluten free than I thought there would be, but then as I was getting the kids snacks ready, I just grabbed a piece of cereal (before the milk was in it) and ate it. If this ends up being a new “thing” for me, that is going to be one of the hardest parts.
My thoughts going into this appointment: C’mon diabetes. I’m working at this again and now you’re going to shove all this at me?!
I AM KICKING DIABETES’ ASS! Yes, I need to tell you about the whole thing, but first, my A1C is 7.2! At my last appointment it was 8.1.
I go in and do all the boring things (blood pressure, weight(it went up slightly, but I blame the rain boots and jacket), BG test and blood for A1C) and they take my pump(s) to download them. (And I hope you didn’t want a waiting room picture because I never was actually in the waiting room.) When I was done with her, I went to wait in the exam room and I didn’t even time to tweet that I was there before my nurse came in.
She asked how I was, what my basals were, which led to talking about switching pumps and how the meter remote was my deciding factor, waiting for my pumps and their reports to come back and if there was anything else I wanted to talk to her about. I told her how I had been experiencing a few Celiac symptoms lately (my guess is that it’s been a few weeks) and how on Tuesday I ate gluten free and I did not experience the symptoms. I wanted to make sure she knew that I was not self-diagnosing, but it was the best way for me to test my theory in such a short period of time, and that I would just like to get tested. I wasn’t going to need labs today, but I think that is worth knowing. She informed me that there are also people who are not Celiac, but have a wheat intolerance, so I may just want to cut back. This is something I have been trying to do, but now I think I just need to focus on it a little bit more.
We continued on and she asked about my feet, so I told her my tingly feet experiences, and she did the metal vibrating tool thing on my big toe and it felt like forever before I could stop feeling. She said she does not think I have neuropathy, it’s just that when I cross my legs my blood vessels are getting squished causing my feet to feel funny.
And then my pump(s) came back with a ton of print outs and we realized that I’ve been going high before lunch, so we increased my breakfast insulin:carb ratio. I told her how I was going low post lunch (a time when I’m frequently getting in the car) so I changed my basals without doing a basal test, but I’m not going low anymore. Tuesday and Wednesday morning I woke up high, but Monday night I was eating a lot and SWAGing, so I didn’t count that as a high BG in the morning, but an unsuccessful SWAG. She agreed.
And then she said, “let’s check your A1C.” And she squealed. “Are you ready?” as she turned her computer screen to me. But I couldn’t find the number! And she told me…”7.2″ And as I stammered through composure and smiling and a whole lot of happiness I heard “Look at what YOU did!!” (And this statement reminded me of something I think George’s doc would say) And I managed to tell her I haven’t been this low since before I started college. If you don’t me well enough and want a reference point, that was 2003. And then even better, “I hope you’re going to celebrate tonight!” I don’t know if I squealed or not, but I did when I got back to my car. And then she told me that this number/drop is even more amazing because it wasn’t achieved because of lots of and/or extreme lows.
And then I had to go back out for labs. I was standing there waiting with all these other people and they were all looking kinda blah, and I couldn’t help but smile! I got my blood taken, scheduled my next appointment, and sat down to text my mom. And then of course share it with all of you. I’m still riding on this high, and I couldn’t be more proud of myself if I tried right now.